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Musings from a Mum of kids with disabilities

I've been involved in the disability community as long as I can remember. From the moment I became a mother I was thrown into a world I didn't know anything about, and scrambling to find advice, resources, support became my single focus for the next twenty years.

I like to share my experiences and thoughts to help others navigating the amazing world of disability.

Powered by Music

I recently heard the radio mention that a group is bringing music therapy to our local hospital. This bought back a flood of memories for me, you see when #1 Son was four, he had his fourth major spinal surgery. The odds were stacked against him with only a 50% chance that he wou...

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Who Cares for Carers?

Having just gotten over a huge bout of the flu, and not being able to see my family and friends got me to wondering once again, what happens when the care giver actually becomes ill? I know I’ve been extremely lucky in that I have my Mum, Dad nearby and my Husband. However, the...

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Invisible Disabilities

For those of you who are not fortunate enough to know people who have a disability this may be a foreign concept. I know before I became involved with people with disabilities I was completely unaware that (ignorant if you like) that not everyone who has a disability looks like t...

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Looking at Abilities- What’s Yours?

In a world that seems to be focusing more and more on the negative things in life, I thought today we would look at Abilities instead. Ability 1. The power or capacity to do or act physically, mentally, legally, morally, financially etc.2. competence in an activity, or occupation...

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A Reason to Live

Everyone needs a reason to live! Let’s face it that’s why we are here, and apart from when we are children and have adults to make decisions for us, we pretty much live our lives the way we want. Our minds and bodies do what we decide is best for us. But, what happens when [&...

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What About Me?

I love when I hear this song on the radio. Why? It’s a reminder to me that I need to look after myself and check on both my physical and mental health. This is something I have learned the hard way. Being diagnosed with depression has helped me to understand that being strong i...

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Are Teacher Aids and Mentors Carers in Disguise?

Regardless of the circumstance children grow up in, all children need one or if they are lucky many mentors in their lives. Children who experience disabilities also have mentors known as Teacher Aids once they reach school age. The idea of teacher aids and mentors had me thinkin...

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Sh*t Happens! The Lighter Side of Incontinence.

Have you ever seen the movie “Death at a Funeral”? In it there is a scene where the elderly Uncle entraps a young friend to assist him in a bathroom visit. Only thing is that Uncle has left it to the last minute. Of course there are numerous obstacles to avoid with the loan w...

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Are You and Your Autistic Child Speaking the Same Language?

“Are we on the same page?” I recently asked my high functioning autistic 21-year-old. “Yes, we’re on the same page Mum, but I think we’re reading different books!” he replied. While we both had a bit of a laugh at this conversation, it made me stop and think about jus...

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Keeping it Real - Looking at the Brighter Side of Life

This blog is not about to make light of how serious living with and caring for someone with a disability can be. However, for sanity reasons for both myself and those I care for I have had to look at those things that strike me and my kids as funny. We often look back at [&hellip...

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